❗ Walt Disney World Marathon Weekend, I’m coming for you again! ❗
There’s a common saying to “walk a mile in someone’s shoes.” Well, I’m not doing a mile: I’m doing 48.6 of them in just 4 days.
Disney Marathon Weekend, I beat you for the first time in 2019, crossing an item off my bucket list.
In 2022, I came back for you, but that race weekend had substantially more meaning: I was supporting the A-T Children’s Project in my quest to conquer the Dopey Challenge. And conquer it, for the second time, I did.
Now, I’m coming back, once again with the A-T CureTeam, as we take over Walt Disney World in January 2023, spreading the message that we need a CURE for A-T!
By clicking “Donate Now,” you can help support the A-T Children’s Project in honor of all the kiddos and young adults living with A-T and in honor of those who have come to the end of their battle. We’re on a mission to find a cure.
Wondering what A-T is? Read on!
❓ What Is A-T ❓
A-T is short for ataxia-telangiectasia, and you very well may have never heard of it! Picture, if you will, a disease that borrows the worst symptoms from muscular dystrophy, cerebral palsy, cystic fibrosis, immune deficiencies, and cancer; and puts it all together to form a mega condition called A-T, a disease that puts most affected children in a wheelchair by age 10 and doesn’t allow many to see their 20th birthday.
Since ataxia-telangiectasia is a multi-system disease, scientists believe that in searching for a cure for A-T, they will learn valuable information in the fight against Alzheimer’s, Parkinson’s, AIDS, and cancer.
❓ Who is the A-T Children’s Project? ❓
The A-T Children’s Project (A-TCP) is a nonprofit that partners with academic and industry investigators worldwide to organize and support innovative research, conferences, and clinical teams that work with data platforms and biomarkers to optimize disease management strategies, develop new treatments, and find a cure.
The A-T CureTeam is the fundraising chapter of the A-TCP, and when you donate, everything goes directly to the A-T Children’s Project to help in their mission to find a cure for this genetic disease that causes a loss of muscle control & balance, cancer, lung disease, and immune system problems in children and young adults, ultimately shortening their lives. If you’d like more information about this cause, please visit atcp.org.
❓ Why the A-T Children’s Project & Team Jared Digby? ❓
I first discovered the A-T Children’s Project while searching for a charity to support during the 2022 Dopey Challenge. I was initially drawn to them because, though the disease is horrific, there is far too little known and no real treatment options. I wanted to do something to help, even though I was a bit late when it came to getting signed up with a charity.
I was placed on Team Jared Digby and got to know Pamela Digby, who is not only Jared’s mom, but is also the Volunteer Coordinator for the A-TCP. My wife and I got to know Mrs. Pam, as we affectionately call her, quite well over the course of fundraising for and running the ’22 Dopey Challenge. (No, my wife doesn’t run: she lends her talents in the volunteering sphere, instead.) We discovered connections that proved to us that being placed on Team Jared Digby was no accident, it was a God thing, and the opportunities that have presented themselves since linking arms with the A-TCP & Team Jared Digby are many.
Jared is no longer suffering on this earth: in fact, my 33rd birthday marked the passage of 10 years since Jared went home to be with our Lord. And in striving to carry on his legacy and keep on going—in search of answers, in search of treatments, in search of a cure—as Jared wanted, I am eager to “do him proud” in January 2023.
Thank you for supporting me, Team Jared Digby, and the A-T Children’s Project!